If you are here, it is logical to assume you are experiencing the fear and trepidation of the uncertain future you and your family are facing living with a (SCI) Spinal Cord Injury or other life changing medical conditions.
Either you, or someone you love and care about, have undergone a major life change that involves a SCI, MS, Spina Bifida or maybe a consequence of a surgery. You are trying to educate yourself and come to terms with what the future may hold. Well, I am glad you found this site and commend you for seeking knowledge. Educating yourself is the best way to get the most out of recovery and rehab or to be the best caregiver you can be for someone you love.
If you have not already done so, be sure to join the community here at Bardcare.com so you can stay up to date as new stories are added. The stories shared here by the contributors can provide education, inspiration and comfort through common shared experiences. You will most likely find somebody that is going through a similar situation as yours. I am a wheelchair dependent L1 complete paraplegic from a SCI, living independently since March 2006 as the consequence of an accident I had in an airplane.
You have a similar statement explaining why you are here as a “member of the club”.
Since my qualification for membership as a SCI, I will speak mostly about that. I have found that each SCI injury and recovery is unique. Your new normal will reveal itself as you continue down this journey. I encourage you to ask questions where you can. Usually, among the SCI community, there are no silly questions and most of us are an open book willing to discuss most anything so don't think you should not talk about things that "normal" people consider off limits. (i.e. bowel, bladder, sexual, functions, etc.)
And sometimes you just need somebody to talk to that “gets it”! I have found that if you ask enough people you should be able to find somebody in the SCI community that shares a similar experience with you and understands what you are going through. And I might add that they usually are much more empathetic than the average able-bodied person and without judgement or an overabundance of misguided pity.
Hopefully you will find comfort, encouragement, and maybe some answers to questions in our stories as we all seek our new normal and continue down the road one day at a time. There is no reason to go it alone.
So I say again, Welcome to the club...NOT!
In order to keep you informed of new stories from Grandin please click on the link below to 'Join Our Community'. All we need is your name and email address to keep you updated.
The opinions and experiences presented herein are for informational use only. Individual results may vary depending on your condition. Always consult with your health care professional. This individual has been compensated by Bard Medical for the time and effort in preparing this article for BARD’s further use and distribution. BMD/BMDA/0218/0613